In much the same way that some families self-isolate after the birth of a child, our family is encompassing Jeannie with a cloak of compassion and love – the very definition of palliative care. So we don’t have much to share this week.
But we can tell you that several months ago – and regularly since – Jeannie and Annie and I have read this poem. We have it taped up beside a window in the kitchen, another copy in the lovely room we have set up as a hospice. Jeannie continues to say that it accurately represents her reality. Though composed to explain the experience of a person with Alzheimer’s disease, it perfectly fits Jeannie’s loss of cognitive function as she moves into a more mystical reality.
Hugs, David, for us all
Do Not Ask Me to Remember
Do not ask me to remember,
Don’t try to make me understand,
Let me rest and know you’re with me,
Kiss my cheek and hold my hand.
I’m confused beyond your concept,
I am sad and sick and lost.
All I know is that I need you
To be with me at all cost.
Do not lose your patience with me,
Do not scold or curse or cry.
I can’t help the way I’m acting,
Can’t be different though I try.
Just remember that I need you,
That the best of me is gone,
Please don’t fail to stand beside me,
Love me ’til my life is done.
– Owen Darnell